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Update on neurologist

(Look at me sitting up at Christmas time with NO braces on!)


Gracie has had 12+ seizures in 2 months, but for the first time ever, she has not required the rescue medicine (diastat) each time - in fact, she's only used it 3-4 times. BUT she's been sleepy, cranky, insomniac, floppy... in other words, on the 3 meds (lamictal, keppra, and depakote) her quality of life has not been good.

So I was looking forward to her neurologist appointment:


Gracie's neurologist appointment went well on Thursday - we are stopping lamictal, keeping her on keppra and depakote (at higher dose), potentially starting a brand new medicine that is coming out at the end of January. We also have appointments to learn more about the ketogenic diet and vagal nerve stimulator. I was pleased that he listened to my concerns about Gracie still having seizures and more importantly not being herself on the three meds.

His eyes bugged out when I told him that we plan on moving to rural Honduras... haha!

Comments

Sintari said…
Yeah, my eyes bugged out about the rural Honduras thing too. You should be used to it by now. :)
Congrats on the good neurologist appt. I hope Gracie gets to feeling better soon.
8:49 PM
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