Skip to main content

Posts

Showing posts from April, 2009

Playing again!

Gracie hasn't played on her own in.... months? half a year? between being on too many meds, having too many seizures, and lately just having one cold after another, she's spent a lot of time not feeling well... but of late, she's returning to normal and getting stronger every day! Now she's playing again and not constantly requiring someone to help her play! horray! Praise God! Oh yes, and Ana is ALL about dirt and being "ou-side!"

spring update

Ana took "go stand with Gracie" literally and decided to sit on Gracie's lap for a photo.  ... Kisses for G'acie! Matching clothes are fun (for Mama) for now! The photo taking is a little less enjoyable... in fact, nearly impossible! The girls aren't sure what to make of 80 degree weather all of sudden - going from coats to sandals is a shock for sure! In keeping with tradition, the change of season, a recent growth spurt, and some sleep disruption (Sunrise service on Easter!) brought two seizures for Gracie, not aborted by swipes of the magnet over her VNS and requiring diastat.  Tomorrow, however, we have our post-op appointment with the neurosurgeon, so we're hoping for a voltage increase.  Only two seizures (that we know of) in a month - hey! Not bad! That includes the fact that she has basically been sick with one cold after another (including fevers to 104) since the surgery as well! Ana loves playing outside, although putting flip-flops between her toes

Easter

Ana loves kitty cats ("meee-ow, meee-ow") so she was thrilled to get a stuffed kitty for Easter from her auntie and grandma. Gracie was hilarious pulling her fun out of her basket, especially when she pulled out a wrapped candy and stuck the whole thing in her mouth! Full of spunk, Ana got to wear Gracie's first easter dress - Gracie wore this when she was 3.5 years old!! Ana wore it at 16 months! :) Gracie looked gorgeous in a dress, cardigan, and sandals that Auntie and Grandma found for her! So grown up and sophisticated! She had a seizure after the sunrise service that didn't stop with swipes of the magnet across her VNS. So she got diastat and was dopy the rest of the day... oh well! Her first seizure in a month!! We are just so happy that she is doing so well! Gracie woke up briefly for photos and Easter baskets - the girls are so cute and are so well behaved! They are such a joy to everyone they are with. We are blessed to overflowing! I was specifically move