My brain is foggy and I feel as if I could have a seizure at the drop of a hat after 6 days of keeping Gracie awake and inciting seizures. She did have two seizures for us each time after I kept her up for most of the night off her meds. She also got a sedated MRI which took her 16 hours to wake up from! All this gives us some good data for moving forward with more definitively treating her seizures. I'll keep you posted!
A year ago, my friend Rachel http://josiecomehome.blogspot.com/ emailed a photo of her beautiful son standing on his own... I've since dreamed of having a photo to post of Gracie doing the same thing. It was always one of those wild-don't-think-it'll-ever-happen kind of dreams, a romantic, fairy tale type of dream. But this week, Gracie made another leap in development and muscle tone. It started when I leaned her up against the wall and planted her feet a shoulder-width apart. For the first time, she didn't lunge for the safety of my arms or hands, but rather, she allowed herself to stand steadily on her own two feet and she kept her center of gravity centered over her feet instead of wildly in front of her or to one side or the other. She even quickly figured out that she couldn't lurch around in excitement while standing on her own two feet with no support but a wall behind her back, but rather had to express her excitement over this new development with a gentl...
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