Skip to main content

Seizure!

Gracie did have a seizure last night. I have never been so happy to see a seizure. I couldn't believe that we got a seizure when we wanted one! She was taken off her meds entirely and I kept her up until midnight reading, watching TV, and tickling. Then, I snuggled her in to bed, but she couldn't fall asleep! Oh my! She struggle to sleep for and hour and a half and then, just after she dozed off on my lap, she had a seizure. I leapt out of bed and joyously pushed the seizure button. Her whole seizure was captured on the EEG and video with full monitoring. Praise God!

The odd thing was that, despite ativan to stop her seizure, she didn't fall asleep for over 2 hours after the seizure! She laid there with her eyes wide open, looking around, occasionally yelling out... very strange. But my comfort was that she was on the monitors, so I eventually caught a few hours of sleep.

She's now in the recovery room after a sedated MRI which will give us lots of information about what caused her cerebral palsy and, of course, more info about where her seizures are coming from. All this is working towards possible surgery.

We're still in the hospital now hoping for a second seizure. We'll probably be in till sunday afternoon or monday.

Comments

Popular posts from this blog

Check out this progress!

A year ago, my friend Rachel http://josiecomehome.blogspot.com/ emailed a photo of her beautiful son standing on his own... I've since dreamed of having a photo to post of Gracie doing the same thing. It was always one of those wild-don't-think-it'll-ever-happen kind of dreams, a romantic, fairy tale type of dream. But this week, Gracie made another leap in development and muscle tone. It started when I leaned her up against the wall and planted her feet a shoulder-width apart. For the first time, she didn't lunge for the safety of my arms or hands, but rather, she allowed herself to stand steadily on her own two feet and she kept her center of gravity centered over her feet instead of wildly in front of her or to one side or the other. She even quickly figured out that she couldn't lurch around in excitement while standing on her own two feet with no support but a wall behind her back, but rather had to express her excitement over this new development with a gentl

Amazing girls!

Gracie and Ana have taken to walking around the church together - Ana pushes Gracie's gait trainer as Gracie walks along. Between the two of them, they make a pretty efficient team (except for the steering part!). They love it and could do it for hours! Gracie has made amazing strides (no pun intended) in standing up - we'll get some video up soon of her standing, supporting herself ONLY with her right hand (her otherwise useless hand) - it's amazing! We didn't dream that we'd see her looking this strong and steady. Plus, now she's smiling and her little heart isn't pounding out of her chest with stress at the thought of standing up without human contact - God is SO good! Gracie went to music camp this summer at the Y which was somewhat fun for her, but definitely good to have her around other kids.

Family of Three!

We are in Liberia - the electricity goes in and out because the generator is having trouble keeping up these days! So hopefully it will stay on long enough to post and the internet connection will allow me this luxury! We were united with precious Gracie on Thanksgiving day - I will write more about this later. But, oh! is Gracie a joy! She is so beautiful, so joyfilled, and a bit mischievious. Her physical limitations do not permit her to accomplish much mischief, but we can tell that she is trying to push some limits already. If we were not in love with her already, she is irresitable and such a treasure and blessing from God. In our two days together, she has not cried once. She spends most of her days smiling, she loves to snuggle (good match for us!), and has the most contagious laugh! Life takes more effort for her - her cerebral palsy is moderate and every activity is a challenge and is clearly tiring for her. Meal times (which she loves) take a long time and much patience and d