We ordered a gait trainer, seat for eating at the table with us, and bath chair today - all to be covered by medicaid!! So exciting! We are also likely going to get a donation of a stander for her. In a few months we will also order a car seat for her (she's outgrowing her standard toddler carseat) which will also be covered by medicaid.
This week Gracie saw:
- her gastroenterologist - she's 10th percentile for both height and weight!!
- a new orthopaedic surgeon who recommended that Gracie not wear her AFO orthotics all the time so that she can get sensory input through her feet AND build muscle in her lower legs.
- her neurologist - we are switching seizure meds still in an attempt to eliminate seizures. She's now gone through Trileptal and Keppra (and a brief initial course of dilantin), now we're on to Lamictal - please pray that this works and continue to pray that she outgrows her seizures and does not require long term anti-epileptic drugs.
- a physical therapist for evaluation to start hippotherapy (horse therapy) next week! fun!
In the next few weeks we'll see:
- a pediatric dentist who specializes in special needs kids - first visit to a dentist!
- a new orthotist
- her opthalmologist and will get new glasses as she has outgrown her current ones.
Busy time for us! We have also gotten the ball rolling to finally get diapers and supplies through medicaid... Time away from work is well spent with my daughters!
Ana is 7 weeks and cooing, smiling, and playing like crazy - she's such an expressive little baby! She's a blast - she and Gracie are gradually bonding! ;-)
This week Gracie saw:
- her gastroenterologist - she's 10th percentile for both height and weight!!
- a new orthopaedic surgeon who recommended that Gracie not wear her AFO orthotics all the time so that she can get sensory input through her feet AND build muscle in her lower legs.
- her neurologist - we are switching seizure meds still in an attempt to eliminate seizures. She's now gone through Trileptal and Keppra (and a brief initial course of dilantin), now we're on to Lamictal - please pray that this works and continue to pray that she outgrows her seizures and does not require long term anti-epileptic drugs.
- a physical therapist for evaluation to start hippotherapy (horse therapy) next week! fun!
In the next few weeks we'll see:
- a pediatric dentist who specializes in special needs kids - first visit to a dentist!
- a new orthotist
- her opthalmologist and will get new glasses as she has outgrown her current ones.
Busy time for us! We have also gotten the ball rolling to finally get diapers and supplies through medicaid... Time away from work is well spent with my daughters!
Ana is 7 weeks and cooing, smiling, and playing like crazy - she's such an expressive little baby! She's a blast - she and Gracie are gradually bonding! ;-)
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