Ana took "go stand with Gracie" literally and decided to sit on Gracie's lap for a photo. ... Kisses for G'acie!Matching clothes are fun (for Mama) for now! The photo taking is a little less enjoyable... in fact, nearly impossible!
The girls aren't sure what to make of 80 degree weather all of sudden - going from coats to sandals is a shock for sure!
The girls aren't sure what to make of 80 degree weather all of sudden - going from coats to sandals is a shock for sure!
In keeping with tradition, the change of season, a recent growth spurt, and some sleep disruption (Sunrise service on Easter!) brought two seizures for Gracie, not aborted by swipes of the magnet over her VNS and requiring diastat. Tomorrow, however, we have our post-op appointment with the neurosurgeon, so we're hoping for a voltage increase. Only two seizures (that we know of) in a month - hey! Not bad! That includes the fact that she has basically been sick with one cold after another (including fevers to 104) since the surgery as well!
Ana loves playing outside, although putting flip-flops between her toes is not so fun for her! She likes the "cute shoes" but scrunches her toes away from the strap!
Gracie has been so strong lately - independant sitting is becoming a realistic reality in the near future! She surprises us in PT all the time. She still hates speech therapy and we have returned to doing switches/big macks, picture exchange, and signs instead of using her computer which she was not accessing at all.
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