Skip to main content

Home!

We were discharged yesterday afternoon and we're home. While in the hospital Gracie was refusing all meds, gagging on her food and really not eating well. We got home and she eagerly took all her meds and gobbled down some dinner (which she later spit up)... very interesting! That girl is so complex beneath her non-communicative exterior! She must get more stressed out by being at the hospital than we realize. Granted, the meds might be a different formulation at the hospital and taste different, but we jumped through all kinds of hoops to make them taste different and she was just gagging and refusing left and right!

I hadn't seen Ana since Monday and Ana hadn't seen Gracie since Monday. Josh had told me on the phone that Ana was whiny and clingy and insecure and fussing for "Mama" but when I walked in with Gracie, I hardly got a glance, it was "Gaa-cie!!" who got all the attention! It was adorable. They both were kissing each other and talking to each other. All dinner long they passed food back and forth, sharing cups and bites, Ana was even trying to feed Gracie! How sweet! I'll take the back seat for attention if it means that my girls are best of friends!

Gracie still struggled going to sleep. While she has the EEG leads on, she feels very itchy and compulsively scratches her face and head. She was still itchy last night, despite a long soaking bath and hair wash. I was so tired and with a migraine that I went to bed with her on the couch at 8, but she struggled. Now, they all slept 12 hours!! My family was tired! And I got a jump start on the day and got a shower and spent time with God before anyone popped out of bed! Yay!

The summary is that we don't know what all those episodes were over the last weekend - Gracie didn't have any seizures in the hospital, she was deydrated, but just mildly. Her urine didn't grow anything, chest xray was negative for pneumonia, EKG was negative for arrythmia, her pancreatic enzymes were normal, her liver enzymes were up just a bit, but that could be anything... It seems that she's doing well on the new medicines and just happened to get a stomach bug the week that she started the new medicine.

Thank you for your prayers!

Comments

Post a Comment

Popular posts from this blog

Uganda unit study - foods

Every tribe in Uganda has different food preferences, but they tend to revolve around these basics.  Boarding school students (i.e. the vast majority of secondary school students) generally eat posho and beans daily except for a Sunday portion of meat.  Imagine eating the same food for every meal! "Food" is the starch while everything else is the "soup" that goes with the food.  Generally a large quantity of the starch is portioned out with a smaller quantity of the soup. "Foods" include: White sweet potato (peeled and boiled) Cassava/manioc (as chips) Irish potatoes (peeled and boiled) White maize ( posho  - as a loaf of sticky "bread") Millet ( atapa or kalo - as a loaf of sticky "bread") Matoke /green plantain (best when steamed in banana leaves) Rice The "soup" includes a wide variety of ingredients in these categories: Greens Beans Cabbage Peanuts - ground into flour or paste depending on the tribe M...
Post a Comment
Read more

Family of Three!

We are in Liberia - the electricity goes in and out because the generator is having trouble keeping up these days! So hopefully it will stay on long enough to post and the internet connection will allow me this luxury! We were united with precious Gracie on Thanksgiving day - I will write more about this later. But, oh! is Gracie a joy! She is so beautiful, so joyfilled, and a bit mischievious. Her physical limitations do not permit her to accomplish much mischief, but we can tell that she is trying to push some limits already. If we were not in love with her already, she is irresitable and such a treasure and blessing from God. In our two days together, she has not cried once. She spends most of her days smiling, she loves to snuggle (good match for us!), and has the most contagious laugh! Life takes more effort for her - her cerebral palsy is moderate and every activity is a challenge and is clearly tiring for her. Meal times (which she loves) take a long time and much patience and d...
6 comments
Read more

Uganda unit study - facts

Uganda facts Kampala is the capital of Uganda. The Ugandan shilling is the currency used here (currently 3800 UGX to 1 USD). The official languages include English and Swahili, but people also speak Luganda and various other languages (like Acholi). The life expectancy in Uganda is 50.4 years. Uganda is a landlocked country bordered by Kenya in the east, Sudan in the north, Democratic Republic of the Congo in the west, Rwanda in the southwest and Tanzania in the south. Uganda’s total land area is 241,559 sq km. About 37,000 sq km of this area is occupied by open water while the rest is land. The southern part of the country includes a substantial portion of Lake Victoria, which it shares with Kenya and Tanzania. Uganda is located on the East African plateau, averaging about 1,100 meters (3,609 ft) above sea level. The plateau generally slopes downwards towards Sudan explaining the northerly tendency of most river flows in the country. Although generally equatorial, the clim...
Post a Comment
Read more