Skip to main content

Long Term Monitoring



We're admitted to Children's Hospital (Boston). Gracie was so incredibly brave about 3 IV attempts, blood draw, and electrode placement on her exquisitely sensitive scalp. She has, of course, won everyone over and has many new friends. I left the room for a few minutes this morning and came back to a crowd in and around her room all laughing with her contagious laugh! The joy of the Lord shines through that child! :)
Now, we are praying for a good seizure, or more, if necessary! We really want to capture a seizure on the EEG, really really! We may also be able to get the sedated MRI done while here, which would be fantastic!

Comments

TinkerDoodle said…
I came across your blog today in a spare time...I use to have several seizures a day...very scary...I hope you catch the information you require she looks like a very sweet little girl! my prayers are with you
1:22 PM
Post a Comment

Popular posts from this blog

Ana Gail Rattin

Ana Gail Rattin (pronounced Ah-nah) Born December 5th, 2007 at 5:35pm at 42 weeks weighing 7lb 8oz, 21 3/4 inches long Some adventures at birth, but everyone's doing great now! Read Luke 2:36-38!
5 comments
Read more

Check out this progress!

A year ago, my friend Rachel http://josiecomehome.blogspot.com/ emailed a photo of her beautiful son standing on his own... I've since dreamed of having a photo to post of Gracie doing the same thing. It was always one of those wild-don't-think-it'll-ever-happen kind of dreams, a romantic, fairy tale type of dream. But this week, Gracie made another leap in development and muscle tone. It started when I leaned her up against the wall and planted her feet a shoulder-width apart. For the first time, she didn't lunge for the safety of my arms or hands, but rather, she allowed herself to stand steadily on her own two feet and she kept her center of gravity centered over her feet instead of wildly in front of her or to one side or the other. She even quickly figured out that she couldn't lurch around in excitement while standing on her own two feet with no support but a wall behind her back, but rather had to express her excitement over this new development with a gentl...
4 comments
Read more

Family of Three!

We are in Liberia - the electricity goes in and out because the generator is having trouble keeping up these days! So hopefully it will stay on long enough to post and the internet connection will allow me this luxury! We were united with precious Gracie on Thanksgiving day - I will write more about this later. But, oh! is Gracie a joy! She is so beautiful, so joyfilled, and a bit mischievious. Her physical limitations do not permit her to accomplish much mischief, but we can tell that she is trying to push some limits already. If we were not in love with her already, she is irresitable and such a treasure and blessing from God. In our two days together, she has not cried once. She spends most of her days smiling, she loves to snuggle (good match for us!), and has the most contagious laugh! Life takes more effort for her - her cerebral palsy is moderate and every activity is a challenge and is clearly tiring for her. Meal times (which she loves) take a long time and much patience and d...
6 comments
Read more