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Hospital... again



It was discouraging to end up admitted to the hospital again on Saturday. The day after we finished a taper off one of her seizure meds, Gracie had a seizure which was self-limited. Although concerned that it happened right after we got off Keppra, we rejoiced that she got out of it without rescue med (which has been a very rare event for her). But the next morning, she had a grand-mal seizure - like the ones she used to have on trileptal. Two doses of diazepam later, we drove her to the hospital and she require a third med in the ED. She stopped seizing but was so snowed that we snuggled in a hospital bed for the rest of the day. When she finally woke up, I convinced her to drink enough so that the nurse would believe me that I could take care of her at home and we got discharged. She did spike a nice fever, but hasn't shown us yet what is making her sick (she just got over a nasty cold). Today, she was as floppy as can be, grouchy, and tired. Very pitiful overall! She couldn't even hold her head up to sit in her wheelchair at church so I switched her to the jogging stroller which reclines and she lay in the jogging stroller passively, looking quite sick. Sick enough, that I took her home as soon as I could because she was looking like she could have another seizure!




Our sweet Gracie...! Please pray that: 1) she would not have seizures at any point during our upcoming trip to Kenya and trip to PA, 2) she would outgrow these seizures and soon be seizure free, 3) our neurologist would have wisdom in medication choices for her. Now we're on lamictal and we're increasing the dose... if that doesn't work... ???

Remember this photo? Wanda, me, and Beth - in the summer - well, here's the line-up of babies! (in reverse order: Beth's Caleb; my Ana; Wanda's Ariana)

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