Skip to main content

Pureed food?!

Gracie had a modified barium swallow on Tuesday (cool study if you've never seen one - real time xrays - she looked like a little dinosaur eating radioactive substances!). She did awesome and charmed everyone with constant giggling during the test.



The good news is that she's not aspirating. The bad news is that she's not chewing very much and she doesn't trigger a swallow until just past the opening to her airway. SO, she's relegated to pureed foods! It's disappointing and a life-style change in a bit of stressful time of life, so I'm struggling with it a bit. For a kid who loves to eat it doesn't seem very pleasant to only get purees now. Plus, she's been gaining weight so beautifully on a regular diet... Pray for us (me) as we adjust and figure out our system. (at least she's still allowed rice with sauce - her favorite!)

Comments

Popular posts from this blog

Family of Three!

We are in Liberia - the electricity goes in and out because the generator is having trouble keeping up these days! So hopefully it will stay on long enough to post and the internet connection will allow me this luxury! We were united with precious Gracie on Thanksgiving day - I will write more about this later. But, oh! is Gracie a joy! She is so beautiful, so joyfilled, and a bit mischievious. Her physical limitations do not permit her to accomplish much mischief, but we can tell that she is trying to push some limits already. If we were not in love with her already, she is irresitable and such a treasure and blessing from God. In our two days together, she has not cried once. She spends most of her days smiling, she loves to snuggle (good match for us!), and has the most contagious laugh! Life takes more effort for her - her cerebral palsy is moderate and every activity is a challenge and is clearly tiring for her. Meal times (which she loves) take a long time and much patience and d...

Ana waiting for Gracie's bus

"Is Gracie's yellow school bus here yet, Mama? Gracie!! Gracie!! Where are you? Come home, Gracie! I'm waiting for you! Mom, where's my sister's yellow school bus? Can I have some toys?"

New Stage of Life

Gracie has entered a new developmental stage. She now is active and has been rolling all over the floor. We cleared out a little living room so that she would have room to roll around - she's rolling front to back, both directions. She also has been much easier to get up on all fours - it used to take 3-4 adults to cram her into the crawling position due to her resistance. She now even spontaneously gets into a semi-crawling position on her own. In the crawling position she's been weight bearing even on her right arm (but always in combination with her left arm). She also has been rocking a little in the crawling position as if she gets it that this is a way that you can move! It's been so exciting. But it also makes her much more eager to be down with other kids and moving around. She's in a very active active stage, always moving, and wanting to move. She's also taken, not just a huge interest in other kids, but also interest in toys a bit more. She's so fun!