Thursday, November 29, 2007

PRAY for a baby!

Please pray that we have our baby soon - we're scheduled for induction 12/4/07-12/5/07 but we'd really like to have her before then. We never thought we'd go two weeks late!!

Saturday, November 24, 2007

still pregnant

Little one just doesn't want to come out! ;-) 3 days overdue feels like a week ...

We celebrated 1 year together on Thanksgiving! Gracie is so precious!

More seizures unfortunately - right sided partial focal with paralysis afterwards (scary looking!) and she was not post-ictal - very strange! I felt so bad giving her diazepam to sedate her when she was awake and playing with us but the seizures just wouldn't stop. God is good - He has given us a sixth sense when something is wrong and even though her last two seizures were very subtle and quiet, we were uneasy all night and so were checking on Gracie frequently - God equips parents according to the needs!
I'm a little lacking on sleep between pregnancy hormones and being attentive to the baby monitor by my head listening for Gracie's breathing... 'yawn'... okay, a lot lacking in sleep, but we'll survive!

Friday, November 16, 2007

Praise God!

Gracie got medicaid! Now we can move forward with getting her some equipment and more services! Praise God!!

Thursday, November 15, 2007

look who's sitting so nicely!

She just wow'ed us with this! Who would have thought!

More seizures this week - bummer!

Pray for our little friend, Josie, who is having lots of struggles -

Friday, November 2, 2007

Pureed food?!

Gracie had a modified barium swallow on Tuesday (cool study if you've never seen one - real time xrays - she looked like a little dinosaur eating radioactive substances!). She did awesome and charmed everyone with constant giggling during the test.

The good news is that she's not aspirating. The bad news is that she's not chewing very much and she doesn't trigger a swallow until just past the opening to her airway. SO, she's relegated to pureed foods! It's disappointing and a life-style change in a bit of stressful time of life, so I'm struggling with it a bit. For a kid who loves to eat it doesn't seem very pleasant to only get purees now. Plus, she's been gaining weight so beautifully on a regular diet... Pray for us (me) as we adjust and figure out our system. (at least she's still allowed rice with sauce - her favorite!)

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